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Key messages for Canadian Brain and Nerve Health Coalition (CBANHC) Impact Study

The Canadian Brain and Nerve Health Coalition (CBANHC) Report

June 2007

CANN representative to CBANHC, Darlene Schindel

What is CBANHC?

The Canadian Brain and Nerve Health Coalition (CBANHC) was established by the CNSF (formerly CCNS) in 2002. CBANHC, a coalition of various voluntary health organizations with an interest in neurological disorders, is committed to improving the quality of life of Canadians by promoting access to cost-effective treatments, supporting research and education and promoting public and government awareness of the incidence and impact of nervous system disorders and injuries.

CBANHC/CNSF has partnered with the Canadian Institute for Health Information (CIHI) and the Public Health Agency of Canada to produce an analysis of health services utilization costs associated with various neurological conditions. The analysis will serve as a baseline of information about neurological disorders across the country and act as a foundation for future CBANHC/CNSF initiatives aimed at better understanding neurological disorders in Canada and facilitating data collection and analysis.

CBANHC’S Goals

By working with all of its members, the Canadian Brain and Nerve Health Coalition will:

  • Promote timely access to cost-effective medicines, treatments and health services including rehabilitation.
  • Promote and support research and education relevant to the optimum health of people living with the effects of disorders, diseases, and injuries to the nervous system.
  • Promote public and government awareness of the incidence and impact of nervous system disorders and injuries.

CBANHC members

  • Acoustic Neuroma Association of Canada
  • ALS Society of Canada
  • Alzheimer’s Society of Canada
  • Autism Society of Canada
  • Brain Injury Association of Canada
  • Brain Injury Association of Alberta
  • Brain Tumour Foundation of Canada
  • Canadian Alliance of Brain Tumour Organizations
  • Canadian Association of Neuroscience (CAN)
  • Canadian Association of Neuroscience Nurses (CANN)
  • Canadian Brain Tissue Bank
  • Canadian Neurological Sciences Federation (CNSF)
  • Canadian Continence Foundation
  • Canadian Down Syndrome Society National Office
  • Canadian Institutes of Health Research
  • Canadian Paraplegic Association (CPA)
  • Canadian Psychiatric Research Foundation
  • Canadian Spinal Research Organization
  • Canadian Syringomyelia Network
  • Canadian VHL Family Alliance
  • Central Okanagan Brain Injury Society
  • Cerebral Palsy Association of British Columbia
  • Epilepsy Canada
  • Heart and Stroke Foundation of Canada
  • Heart and Stroke Foundation of Ontario
  • Huntington Society of Canada
  • Institute of Neurosciences, Mental Health and Addictions (INMHA)
  • Multiple Sclerosis Society of Canada
  • Muscular Dystrophy Association of Canada
  • Neuroscience Canada Foundation
  • Ontario Brain Injury Association
  • Parkinson Society Canada
  • Le Regroupment des associations de personnes tramatisées cranio-cérébrales du Québec
  • Spina Bifida and Hydrocephalus Association of Canada
  • Think First Foundation of Canada
  • Tourette Syndrome Foundation of Canada
  • Tuberous Sclerosis Canada

Impact Study on Neurological Disease, Disorders and Injuries in Canada

The Impact Study is a collaborative project between CBANHC, the Canadian Institute of Health Information (CIHI) and Health Canada. The report will be released during the Annual CNSF/CANN meeting in Edmonton June 2007. The Impact Study will measure the incidence, prevalence, economic and social impact of neurological diseases, disorders and injuries in Canada. The study will also clearly identify the areas where there is little or no knowledge about the incidence, prevalence and economic burden of illness.

The final report will include chapters on 11 individual diseases and disorders with a description of the disease or disorder, signs and symptoms and treatment, followed by collected data on the incidence, prevalence and economic burden.

CANN hopes to provide access to the report through the website. Hopefully neuro nurses and health care providers can make use of the information for improving health care in their specific area of neuroscieinces.


View previous CBANHC reports